At 3 A.M. I was awake and listening to the storm outside. It was raining so hard I could hear it pelting our roof and the windows, and the wind was making that rattling sound against the windows. I was the only one awake in the house. I couldn’t sleep because of the noise and because of the pain.
Mr. Rockstar was lying in bed lightly snoring. I kissed his forehead and got up out of the bed and headed to the kitchen. I poured myself a glass of milk and then checked my email. After checking my email, and then FB, posting something on FB, I opened my folder in MS Word and began writing. I’m working on a novel. I wrote for about an hour and then realized if I made coffee now then it would still be good when Mr. Rockstar woke up (his alarm is set for 4:30 but he usually hits the snooze button repeatedly until around 5). So I made a pot of coffee and went back to writing.
However, I kept getting up and stretching because of the pain. And my tooth began to hurt again. DAMN! All the complaining. Damn all the pain! Damn! Damn! Damn! I thought to myself. I hate complaining. I hate being in pain and I feel like I’m beginning to sound like a broken record. So I tell myself, “Be patient. Have some compassion for yourself. It’s not your fault you’re uterus is filled with tumors. It’s not your fault you don’t have insurance…” Then I think, “Ah, but it is. If I had a different job, or a real job… then I’d have benefits.” And I’m already hearing that from Mr. Rockstar, “Baby, I’m sorry I’m not doing a better job of taking care of you…” And I know that he’s already feeling down about the whole thing. So I try hard not to complain around him, I save the complaining for my writing–sorry, those of you who actually read my blog.
So I pour myself another cup of coffee and take 800mg of Moltrin. It won’t get rid of the tooth ache or the pain in my uterus completely, but it will ease it off. I listen to the sounds of the storm bellowing outside and go back to writing. I’m on page 27 of my novel (I’ve tried several times over the past month and I’ll get to about page 20-50 and realize it’s not really what I want, where I want to go… but this time I actually made an outline, and I actually have a character and plot diagram of sorts (thank goodness for index cards) so I feel good about it). I realize while I’m writing that I’ve let the pain get the better of me. I’m in pain most of the time, yes, but there’s more to my life than the pain. I’ve ostracized myself from outside activities because any time I do something, even something as simple as cleaning part of the house, if it requires actual physical activity like bending up and down, walking quite a bit, standing for awhile, etc then I’m all but incapacitated the next day. So I’ve begun to pace myself when it comes to cleaning or doing anything.
If I put off doing the things I want to do until after I have surgery, which won’t happen until we have health insurance, then I’ll be waiting…Waiting…WAITING my life away. I refuse to do that. I’m a doer, a go getter, a busy bee…I prefer to be doing something. This is wreaking havoc on me mentally, not just physically. So what to do? Hide from the world? Stay in the house except to go to the grocery store or to run errands. Visit family and friends on occasion. I can’t do that. I have a grandson that I need and want to spend time with. I have a family. I have friends. I have a life outside of this pain that I would really like to get back to. So what do I do?
I figure out ways to be happy and energetic while in pain. I remember to appreciate the small things. I look at all the blessings I have in my life and remind myself of those while I’m in pain. So I’ll continue to pretend to be okay even though I’m in pain until I can no longer stand it…that way Mr. Rockstar doesn’t realize how badly I hurt all the time, nor do others. This whole thing really irritates me because there are people out there who are able to have surgeries like the one I need with assistance even though they don’t have health insurance, yet I am unable to do so. And we’ve priced private health insurance and we simply cannot afford it. It’s to the point now where the best thing we could probably do is wait until the pain is so intense that I have no choice but to go the doctor again or back to the emergency room and maybe they’ll order an emergency hysterectomy and then we can just make payments to the hospital once it’s over. We’ll most likely be paying the bill for the rest of our lives but at least it would be done. It’s such a shame that a country such as the United States can spend so much money helping other countries but people in our own country are suffering.
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dmauldin53
March 6, 2013 at 4:23 pm
Sending loving, unpainful thoughts your way! “HUGS”
Lissa
March 7, 2013 at 7:11 am
Thanks 😀
purpleborough
March 6, 2013 at 6:59 pm
I don’t “like” that you have pain but that you hit the nail on the head. The USA can send billions to other countries but nothing for those of us in this country. How incredible is that.
Find a Hill-Burton Hospital. They have to take you whether you can pay or not. I had a friend who paid $10. a month until they finally just wrote it off so don’t wait; go to the nearest ER and have those pain free days to enjoy your life.
Lissa
March 7, 2013 at 7:08 am
They have one about an hour from where I lived. I just checked. So I’m going to find out some more information on it. Thanks.
The Savvy Senorita
March 7, 2013 at 4:51 am
I am shocked you are waiting so long for the op, I thought the UK NHS system was terrible. I really just want to say, you have inspired me – “If I put off doing the things I want to do until after I have surgery, which won’t happen until we have health insurance, then I’ll be waiting…Waiting…WAITING my life away. I refuse to do that. I’m a doer, a go getter, a busy bee…”
Wow, so many people would just give up, an excuse to do so, to hide away and retreat. The thought of waiting a life away makes me sad and quite sick; so happy you are choosing not to.
Bex :).
Lissa
March 7, 2013 at 7:10 am
I was diagnosed in Dec with uterine fibroids. The tumors are about the size of golf balls, and there are a number of them. They’re trying alternative means right now to see if it will help, but it’s not really helping much. I go back to the DR next week so I’m going to talk to them and see what we can do.
The Savvy Senorita
March 7, 2013 at 7:37 am
Oh my goodness, that sounds awfully painful. I certainly hope they can do something more effective to help your pain.
Lissa
March 7, 2013 at 7:14 am
Thank you. I was thinking and writing and it hit me that lately I’ve been getting closer and closer to hiding away and I just can’t and won’t do that. Sometimes we just need to get our thoughts together, and that’s what the post was about. The US needs to do something about their healthcare system, and it’s not force people to buy it, it should be available to everyone regardless.
Multifarious meanderings
March 7, 2013 at 12:52 pm
Crikey. Sending hugs across the big pond to you. I’m amazed that the US can spend so much on helping solve conflicts abroad before taking care of the basic rights of their own nationals. I thought Obama promised that everyone would have health care? Suddenly the French system seems ridiculously generous in comparison.
Lissa
March 7, 2013 at 12:56 pm
We’re all going to have to have some kind of healthcare or be fined, but for those of us who don’t qualify for Medicaid or Medicare and who can’t afford private insurance,or whose jobs don’t provide benefits…We’re still screwed. My husband mentioned moving to Canada last night, lol!